Nota Cares Organization

Banding Together to Support those Suffering from Tyrosinemia

NOTA Cares is a global nonprofit organization dedicated to supporting individuals and families affected by Tyrosinemia—a rare genetic metabolic disorder. Originating from a Facebook group, it has evolved into a worldwide community offering resources on diagnosis, treatment, and dietary management. Through advocacy, education, and events like the NOTA Experience, NOTA Cares fosters connection, empowers patients, and promotes early detection and comprehensive care.